Hermanowski Family Foundation Initial Request Form

---

Organization Name: Cure CMD
Legal Name (if Different):
Also Known As:
Mailing Address: 3217 Carson St #306
City: Lakewood
State: CA
Postal Code: 90712-4006
Main Phone: 562-444-5656
Main Fax: 310-684-2023
Organization Website: curecmd.org
Employer ID Number: 26-2640975
Organization Tax Status: 501(c)3, active/in good standing

Proposal Information

---

Today’s Date: 03/29/2024
Requested Amount: 5000

Project Title: Promoting Independence and Quality of Life for the Congenital Muscular Dystrophy Community
Project Description:

Through a series of webinars, virtual happy hours, peer-to-peer match making, and the development of an adaptive products guide, our goal is to ensure that those living with congenital muscular dystrophy have the tools and resources they need to live as independently as possible, and improve their quality of life.

Congenital muscular dystrophy (CMD) is a group of muscle-wasting disorders that are present from birth through the first two years of life, causing global muscle weakness, the inability to walk, breathing, feeding, and cardiac complications, and sometimes, cognitive impairment.

A diagnosis of CMD often means that the affected individual and their family feel isolated, unsupported, and daunted by the overwhelming task of creating an accessible environment in which the affected individual can thrive, despite profound physical disability. Our goal is to mitigate these hurdles by providing a variety of resources for community members to self-advocate and make informed decisions that promote health and quality of life.

In addition to the needs of the affected individual, we also support caregivers. The thankless job of ensuring the health and safety for their loved one causes burnout and further isolation. Caregivers need support and a safe space to share their challenges and feel validated. Not everyone approaches mental wellbeing the same way, so we work to provide alternatives that support the caregiver in the most important job of their life.

Cure CMD will launch or improve upon existing programming that offers both structured and unstructured support, and most importantly, provides hope and a positive outlook for the future for this community. Our staff includes three affected individuals and one parent, all well-connected with the community and constantly striving to better understand where their most immediate needs lie. With your foundation’s support, we can make a tangible difference for those living with CMD.

Total Project Budget: 25000

Other Funding
Sources For The Project (Committed & Potential): Community and Major gift donations

Project Duration: 1 year to develop and implement new programming, ongoing thereafter
Geographical Area Served: United States + Global
Age Group To Be Served: Parents of affected children, affected young adults and adults, adult caregivers

Contact Information

---

Contact Prefix (Mr,Mrs etc.): Ms
Contact First Name: Rachel
Contact Last Name: Alvarez
Contact Title: Executive Director
Contact Phone: 562-444-5656 x103
Contact Email: development@curecmd.org