Hermanowski Family Foundation Initial Request Form

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Organization Name: American Partnership for Eosinophilic Disorders (APFED)
Legal Name (if Different):
Also Known As:
Mailing Address: P.O. Box 29545
City: Atlanta
State: GA
Postal Code: 30359
Main Phone: 713-493-7749
Main Fax:
Organization Website: www.apfed.org
Employer ID Number: 76-0700153
Organization Tax Status: 501c3

Proposal Information

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Today’s Date: March 21, 2024
Requested Amount: 10,000

Project Title: Youth Advisory Council
Project Description:

As the prevalence of eosinophilic esophagitis (EoE) and eosinophilic asthma continues to rise, the American Partnership for Eosinophilic Disorders (APFED) is planning to launch a Youth Advisory Council (YAC). Eosinophilic disorders encompass a group of conditions characterized by elevated levels of eosinophils, a type of white blood cell, in various tissues and organs. These elevations of eosinophils causes inflammation that can be quite problematic. EoE, specifically, is a chronic immune-mediated disorder of the esophagus, causing inflammation and difficulty swallowing, often requiring strict dietary management. Eosinophilic asthma, on the other hand, involves inflammation of the airways, leading to symptoms such as wheezing and shortness of breath.
Recognizing the unique challenges teenagers face with these rare and chronic conditions, the YAC will provide a platform for adolescent voices to be heard. Comprised of teenagers affected by eosinophilic disorders, the council can offer valuable feedback to APFED leadership on the unmet needs within the EoE and eosinophilic asthma communities.
Based on the insights provided by the YAC, APFED will develop tailored resources and initiatives to address the specific challenges encountered by teenagers living with eosinophilic disorders. Additionally, the council will establish a network of ambassadors to support online communities such as the APFED community, Eos Connection, and the Inspire Network, which collectively engage over 17,000 users worldwide.
The overarching mission of the Youth Advisory Council is to equip teenagers affected by eosinophilic disorders with essential resources and a supportive network. By educating adolescents about their conditions and empowering them to take control of their health and well-being, APFED aims to foster a community where teenagers can find guidance, support, and empowerment as they navigate their journey with eosinophilic disorders.

Total Project Budget: $39, 250.00

Other Funding
Sources For The Project (Committed & Potential): Hilda & Preston Davis Foundation $10,000 – pending, Open Hearts Foundation $15,000 – pending,

Project Duration: 1 year
Geographical Area Served: United States
Age Group To Be Served: 10-19

Contact Information

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Contact Prefix (Mr,Mrs etc.): Mrs.
Contact First Name: Bette
Contact Last Name: Marchese
Contact Title: Partnership Coordinator
Contact Phone: 540-907-1772
Contact Email: bmarchese@apfed.org