Hermanowski Family Foundation Initial Request Form

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Organization Name: Sudden Arrhythmia Death Syndromes Foundation
Legal Name (if Different):
Also Known As: SADS Foundation
Mailing Address: 4527 Wouth 2300 East #104
City: Salt Lake City
State: Utah
Postal Code: 84117
Main Phone: 801-272-3023
Main Fax: 801-505-0282
Organization Website: www.sads.org
Employer ID Number: 87-0492100
Organization Tax Status: 501 (c) (3)

Proposal Information

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Today’s Date: 02/27/2024
Requested Amount: $5,000

Project Title: 2024 Connection, Education, Advancement with and for SADS Families
Project Description:

The SADS Foundation exists to save the lives and support the families of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities through the four pillars of Awareness & Prevention, Patient & Family Support, Medical Education, and Research & Advocacy.
Fast, irregular heartbeats caused by SADS conditions can prevent a child from getting the necessary level of oxygen-rich blood which results in fainting or a sudden cardiac arrest (SCA). SADS conditions are an inherited genetic mutation passed down from a family member. Children with a parent or sibling who has SADS have a 50% chance of having it. Experts estimate these arrhythmias are found in about 1 in 7,000 young people and cause about 4,000 sudden deaths each year.
Our most important service is supporting families who have just found out their child/ren have SADS. Many families come to us after a young family member has survived or passed away from a SCA. Families require many services as they learn to live and thrive with SADS. During the first period of finding answers, families may need to know how to obtain a blood sample from the medical examiner, what cardiac specialist is right for them, details of insurance coverage, the steps of genetic testing, and what precautions need to be taken. And just as importantly, families need emotional support during the scary process of learning how to appropriately manage their child’s condition.

We provide families with the critical and compassionate support to take them through each step of navigating their child’s journey. We educate families to participate in their child’s care and make the most-informed decisions possible as well as connect them with other families so they may share mutual experiences. Empowerment leads to the entire family living their best lives.

Total Project Budget: 389,000

Other Funding
Sources For The Project (Committed & Potential): Annual Donors: Boston Scientific – 15,000; Sorenson Legacy Foundation – 10,000; Tenaya Therapeutics – 10,000; Independent Order of Odd Fellow of Pennsylvania – 2,000; SADS Families and Friends – 135,000

Project Duration: One Year
Geographical Area Served: United States
Age Group To Be Served: Mostly children and young adults.

Contact Information

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Contact Prefix (Mr,Mrs etc.): Ms.
Contact First Name: Jan
Contact Last Name: Schiller
Contact Title: Development Director
Contact Phone: 801-712-4265
Contact Email: jan@sads.org