Grant Request Gold Coast Down Syndrome Organization
Hermanowski Family Foundation Initial Request Form
Organization Name: Gold Coast Down Syndrome Organization
Legal Name (if Different):
Also Known As:
Mailing Address: 7300 N Federal Highway, Suite 100
City: Boca Raton
State: FL
Postal Code: 33487
Main Phone: 5617523383
Main Fax: N/A
Organization Website: https://goldcoastdownsyndrome.org
Employer ID Number: 59-2350275
Organization Tax Status: Exempt
Proposal Information
Today’s Date: 1/29/2025
Requested Amount: $5,000
Project Title: Educational Advocacy
Project Description:
Education creates opportunities for everyone to live a more meaningful life. Getting the best education for a child with Down syndrome comes with unique challenges. Those challenges can get in the way of ultimately having a job, living independently and giving back to the community. And these are challenges that are not just overcome once and done.
Every time a child with Down syndrome moves to a new school there are new administrators, new teachers, bigger campuses, different rules, and bigger expectations. Once transitioned into the new school, each year brings new teachers and paraprofessionals working with the child and a review of the Individual Education Plan (IEP) goals to be updated. The purpose of the Educational Advocacy Program is to protect the rights of the child under the Americans With Disabilities Act of 1990. The Educational Advocacy Program will guide parents in navigating the complexities of the system to secure the parent’s educational placement of choice for the child with each transition and new school year from preschool to high school graduation.
EDUCATIONAL ADVOCACY for children with Down syndrome has been central to GCDSO’s mission for 45 years. The Educational Advocacy Program provides – at no cost – a professional advocate who has over 25 years of experience. GCDSO’s Advocate will arrange for school tours; conduct school observations; speak with special education contacts and school administrators; obtain placement approval; draft appropriate IEP goals; attend IEP meetings with parents; address IEP and curriculum modification non-compliance issues; and conduct classroom observations of the child to make behavior management suggestions. Classroom education prepares parents for the basics of the IEP at every stage and includes topics such as the IEP process; interpreting documents; least restrictive environment; behavior; effective home/school relationships; curriculum modifications and more.
GCDSO believes that every child with Down syndrome in Palm Beach County deserves to have a professional advocating for them regardless of financial status. While private educational advocates charge $150 – $300 per hour, GCDSO does not and never has charged our members for this service. The requested grant funds will be used to allow GCDSO to continue to do so. The demand is growing and with the proper funding we can meet this demand.
Anticipated Outcomes: 75 families will receive Educational Advocacy resulting in appropriate school placement decisions out of which 15 will be for Transitional Advocacy; 85% of children represented will secure Individual Education Plans (IEPs) with appropriate learning goals and services to meet their academic needs; 85% of children provided with advocacy services will be included in a general education classroom.
Total Project Budget: $34,262
Other Funding
Sources For The Project (Committed & Potential): The Batchelor Foundation Potential $6,400; Children’s Services Council Committed $12,000; Mirasol Foundation Potential $5,000; The Marino Family Charitable Foundation Potential $5,000
Project Duration: 1/1/2026 – 12/31/2026
Geographical Area Served: All of Palm Beach County
Age Group To Be Served: Ages 3 to 22
Contact Information
Contact Prefix (Mr,Mrs etc.): Ms.
Contact First Name: Corinne
Contact Last Name: Pike
Contact Title: Director of Development
Contact Phone: 561-752-3383
Contact Email: goldcoastdsorg@att.net