{"id":2568,"date":"2023-01-24T16:39:55","date_gmt":"2023-01-24T21:39:55","guid":{"rendered":"http:\/\/hermanowskifoundation.org\/members\/?p=2568"},"modified":"2023-01-24T16:39:55","modified_gmt":"2023-01-24T21:39:55","slug":"grant-request-charge-syndrome-foundation-2","status":"publish","type":"post","link":"http:\/\/hermanowskifoundation.org\/members\/?p=2568","title":{"rendered":"Grant Request CHARGE Syndrome Foundation"},"content":{"rendered":"<p>Hermanowski Family Foundation Initial Request Form<\/p>\n<hr size='1' noshade='noshade' \/>\n<p>Organization Name: CHARGE Syndrome Foundation<br \/>\nLegal Name (if Different): <br \/>\nAlso Known As: <br \/>\nMailing Address: 318 Half Day Rd. #305<br \/>\nCity: Buffalo Grove<br \/>\nState: IL<br \/>\nPostal Code: 60089<br \/>\nMain Phone: 210-842-8987<br \/>\nMain Fax: <br \/>\nOrganization Website: https:\/\/www.chargesyndrome.org<br \/>\nEmployer ID Number: 43-1642150<br \/>\nOrganization Tax Status: 501c3<\/p>\n<p>Proposal Information<\/p>\n<hr size='1' noshade='noshade' \/>\n<p>Today&#8217;s Date: 01\/24\/2023<br \/>\nRequested Amount: 10,000<\/p>\n<p>Project Title: Family Assistance Program &#8211; Medical Travel<br \/>\nProject Description:<\/p>\n<p>Because of the significant medical complexities that are present with CHARGE syndrome, families are often forced to travel long distances for specialized medical and therapeutic care for their child. This funding will be used to cover transportation, meals, lodging, and parking for medical care that requires out of state\/long distance travel. The program is intended for families who would benefit from assistance to cover the cost for travel to receive medical care for their family member with CHARGE syndrome.<br \/>\nThis program benefits individuals with CHARGE syndrome and their families or caregivers, particularly families with household incomes below $50,000 annually. Since its inception, the Foundation has supported over 400 families across the United States with costs associated with their necessary medical travel. In response to rising costs of travel, the program is being expanded to increase average award amounts from $620 per request to $720 per request. The Foundation hopes to assist at least 14 families with this award. <\/p>\n<p>Award Requirements:<br \/>\n\u2022\tA family member must have a diagnosis of CHARGE syndrome<br \/>\n\u2022\tApplicant must live and receive medical care in the United States<br \/>\n\u2022\tEligible Travel must be over 100 miles roundtrip<br \/>\nReimbursable Expenses:<br \/>\n\u2022\tTransportation, including gas, airfare or train fare<br \/>\n\u2022\tMeals during travel<br \/>\n\u2022\tLodging<br \/>\n\u2022\tParking <\/p>\n<p>If a family has an unplanned medical trip, which can be common with a complex and medically severe condition like CHARGE syndrome, they can request reimbursement within 30 days after returning home from a completed treatment.  <\/p>\n<p>This program is evaluated on an annual basis, and reports are disseminated quarterly. Key performance indicators for 2023 include: an increase in average award amounts by 16%, an increase in awards to households with a combined total household income of less than $50,000 and an improvement in physical and mental health of awarded individuals.\n<\/p>\n<p>Total Project Budget: 50,000<\/p>\n<p>Other Funding <br \/>\nSources For The Project (Committed &amp; Potential): Alcon Foundation, Centene Charitable Foundation, Sorenson Legacy Foundation, The Lawrence Foundation, Dr. Scholl Foundation, Menasha Corporation Foundation, Max and Victoria Dreyfus Foundation<\/p>\n<p>Project Duration: 1 year<br \/>\nGeographical Area Served: nationwide<br \/>\nAge Group To Be Served: 0-21<\/p>\n<p>Contact Information<\/p>\n<hr size='1' noshade='noshade' \/>\n<p>Contact Prefix (Mr,Mrs etc.): Mrs<br \/>\nContact First Name: Lisa<br \/>\nContact Last Name: Cunningham<br \/>\nContact Title: Executive Director<br \/>\nContact Phone: 210-842-8987<br \/>\nContact Email: lisa@chargesyndrome.org<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Hermanowski Family Foundation Initial Request Form Organization Name: CHARGE Syndrome Foundation Legal Name (if Different): Also Known As: Mailing Address: 318 Half Day Rd. #305 City: Buffalo Grove State: IL Postal Code: 60089 Main Phone: 210-842-8987 Main Fax: Organization Website: https:\/\/www.chargesyndrome.org Employer ID Number: 43-1642150 Organization Tax Status: 501c3 Proposal Information Today&#8217;s Date: 01\/24\/2023 Requested [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"class_list":["post-2568","post","type-post","status-publish","format-standard","hentry","category-grants"],"_links":{"self":[{"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/posts\/2568","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2568"}],"version-history":[{"count":1,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/posts\/2568\/revisions"}],"predecessor-version":[{"id":2569,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=\/wp\/v2\/posts\/2568\/revisions\/2569"}],"wp:attachment":[{"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2568"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2568"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/hermanowskifoundation.org\/members\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2568"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}